Patient enrolment data drawn from NSW Integrated Care initiatives are captured in the Patient Flow Portal. Three times a year this data is extracted, and linked to other NSW Health data sources, de-identified and uploaded onto the Integrated Care Outcomes Database (ICOD).
ICOD enables the tracking of activity of patients that have been enrolled in an integrated care initiative such as:
Health Information Exchange (HIE) is the electronic movement of health related information among organisations according to nationally recognised health standards. The goal of facilitating access is to retrieve clinical data provided by physicians, nurses, pharmacists, other health care providers and patients. The HIE holds the Admitted Patient Data Collection (APDC), Emergency Department Data Collection (EDDC), and the NSW Registry of Births, Deaths, and Marriages (RBDM) data.
The Enterprise Data Warehouse for Analysis Reporting and Decision Support (EDWARD) is a new comprehensive data collection that services the wide range of analytics tools used system wide, and aids in the development of new analytics applications. EDWARD has all Non-Admitted Patient (NAP) data.
The Centre for Health Record Linkage (CHeReL) links multiple sources of data and maintains a record linkage system that protects privacy. Record linkage brings together information that relates to the same individual, family, place or event from various sources. This makes it possible to create longitudinal sequences of health events. Combined, these individual stories create a larger story about the health of people in NSW. Information from both the HIE and EDWARD are linked to integrated care patients by CHeReL.
The Bureau of Health Information (BHI) collects data on patient experience and the performance of various hospitals and clinics. Data from patients who have given consent for their results to be shared will be sent to CHeReL. Data that is currently being collected by BHI includes Patient Experience surveys.
The new Patient Reported Measures (PRMs) IT system, HOPE supports the routine collection, measurement of data and timely reporting of PRM outcomes to clinicians. HOPE systems will be implemented across Districts, trialled by the Leading Better Value Care and Integrated Care initiatives. The data collected through HOPE will complement the range of existing NSW Health PRMs collections, including the Patient Survey run by BHI.
It is an ethically approved program that securely links encoded data from general practices to other health data in NSW, including hospital and emergency department, with privacy of patients securely maintained.