Accessing Lumos data

The Lumos data asset is stored in the Secure Analytics Primary Health Environment (SAPHE), a highly secure cloud solution designed by Lumos. It includes a remote desktop with analytics programs including SQL Server Management Studio, Azure Data Studio, R & R Studio, Microsoft Office 365, and Power BI Desktop. Access to Lumos data is restricted to those who meet the eligibility criteria.

Who can apply for access?

You may be eligible to access Lumos data through the SAPHE if you:

• are a NSW Health or Primary Health Network (PHN) employee, or are formally sponsored by a relevant organisation
• will use the data to support the planning, funding, management, or evaluation of health services. Data access is not currently approved for research purposes or for patient level analysis
• have demonstrated skills and experience in statistical data analysis.

If eligible, please contact the Lumos Team via email: lumos@health.nsw.gov.au (application processing can take up to 6 weeks).

Lumos data user responsibilities

Due to the highly sensitive nature of the Lumos data asset, all SAPHE users are bound by the conditions of data release, terms of use and confidentiality undertaking for the Lumos data asset.

This includes the following terms of use. Users of the Lumos data through the SAPHE:

• must not link or otherwise match Lumos data with information on individuals in other datasets
• must not export any data that could expose identifiable patient-level information or clinical coding reference data
• must not share access to, or disclose, Lumos data or personal information derived from the Lumos data in an identifiable form (e.g., publication or presentation)
• must only use the data for the purposes approved in their application and in accordance with the approved Lumos ethics protocol and all subsequent amendments
• must provide the Lumos team with advanced notice of any planned publications
• may be subject to criminal penalties for misusing Lumos data.

When conducting analyses, users should consider not only the objectives of proposed analyses but any ethical implications if the results were to be published or actionable insights led to any implementation, including the potential impact(s) on vulnerable populations.

User support

SAPHE users are supported through a personalised onboarding session and training resources. Monthly Community of Practice sessions are also held to allow users from across NSW to meet virtually, share experiences, and develop relevant skills.